Change the way you see
In PV, your body makes too many blood cells, which can lead to thicker blood, reduced blood flow, and an increased risk of blood clots and other serious complications. This can also lead to troubling symptoms, such as headaches and brain fog, just to name a few.
For a number of reasons, PV can cause your spleen to grow and become bigger. An enlarged spleen can lead to symptoms that may include feeling full when you haven't eaten (or have eaten very little), and abdominal pain or discomfort.
In addition, PV may cause your body to overproduce certain proteins that cause inflammation. When your body has too many of these proteins, you may experience fatigue, itching, night sweats, and other burdensome symptoms that can have a very real impact on your life.
This is not a full list of possible PV symptoms. Because each person with PV is unique, be sure to talk with your care management team about all of the symptoms that you experience—even if you don’t think they are related to your condition. Remember, it’s important to pay close attention to your PV symptoms—and to take action by discussing any changes with your Healthcare Professional.
Watch for signs that your
PV is a progressive disease, which means that it could get worse over time. You track and discuss blood counts with your Healthcare Professional to monitor your PV and help prevent blood clots and other serious complications. But it’s just as vital to be aware of—and discuss—any new or changing PV symptoms as well. This is because symptoms can change so slowly over time that you may not notice them. In fact, changes in the frequency or severity of your PV symptoms can be a sign of disease progression.
Remember, keeping track of blood counts and symptoms—and having regular conversations with your Healthcare Professional—can help ensure that you’re getting the care that you need. It can change the way you see PV.
Having the right discussions with your Healthcare Professional isn’t always easy.
But knowing where to start can help.
The MPN Research Foundation educates and empowers patients. This includes access to the latest research and clinical trials for PV, as well as helping patients find an MPN expert specializing in PV.
View a more comprehensive list of common symptoms associated with PV.
Have a more informed discussion with your Healthcare Professional with the help of the NCCN Guidelines for Patients®: Myeloproliferative Neoplasms