Change the way you see

Polycythemia Vera (PV)

 

When you’re living with a rare, chronic blood cancer like polycythemia vera, or PV, you might look good on the outside—even when you don’t feel good on the inside.
watch commercial
 
 
 
Take a closer look at PV symptoms
 

In PV, your body makes too many blood cells, which can lead to thicker blood, reduced blood flow, and an increased risk of blood clots and other serious complications. This can also lead to troubling symptoms, such as headaches and brain fog, just to name a few.

For a number of reasons, PV can cause your spleen to grow and become bigger. An enlarged spleen can lead to symptoms that may include feeling full when you haven't eaten (or have eaten very little), and abdominal pain or discomfort.

In addition, PV may cause your body to overproduce certain proteins that cause inflammation. When your body has too many of these proteins, you may experience fatigue, itching, night sweats, and other burdensome symptoms that can have a very real impact on your life.

This is not a full list of possible PV symptoms. Because each person with PV is unique, be sure to talk with your care management team about all of the symptoms that you experience—even if you don’t think they are related to your condition. Remember, it’s important to pay close attention to your PV symptoms—and to take action by discussing any changes with your Healthcare Professional.

 

Watch for signs that your

PV may be changing

 

PV is a progressive disease, which means that it could get worse over time. You track and discuss blood counts with your Healthcare Professional to monitor your PV and help prevent blood clots and other serious complications. But it’s just as vital to be aware of—and discuss—any new or changing PV symptoms as well. This is because symptoms can change so slowly over time that you may not notice them. In fact, changes in the frequency or severity of your PV symptoms can be a sign of disease progression.

Remember, keeping track of blood counts and symptoms—and having regular conversations with your Healthcare Professional—can help ensure that you’re getting the care that you need. It can change the way you see PV.

 
Talk with your Healthcare Professional about how PV affects your life
 
 

Having the right discussions with your Healthcare Professional isn’t always easy.
But knowing where to start can help.

Image of a person holding the downloadable polycythemia vera checklist Image of a person holding the downloadable polycythemia vera checklist Image of a person holding the downloadable polycythemia vera checklist
DISCUSSION GUIDE

Download the PV Checklist, a helpful discussion guide designed to help you and your Healthcare Professional evaluate your PV.

Image of a person holding a phone showing the MPN tracker tool Image of a person holding a phone showing the MPN tracker tool Image of a person holding a phone showing the MPN tracker tool
SYMPTOM TRACKER

Track your PV, including blood counts and symptoms, with the MPN Tracker Tool.

Get more information and support resources for Living with PV
 
 
Learn about the
latest MPN research

The MPN Research Foundation educates and empowers patients. This includes access to the latest research and clinical trials for PV, as well as helping patients find an MPN expert specializing in PV.

Visit MPN Research
Foundation

Recognize common
PV symptoms

View a more comprehensive list of common symptoms associated with PV.

Visit
VoicesOfMPN.com

Get expert advice about
living with PV

Have a more informed discussion with your Healthcare Professional with the help of the NCCN Guidelines for Patients®: Myeloproliferative Neoplasms

Learn more about
NCCN Guidelines For Patients