Change the way you see Polycythemia Vera (PV)
When you’re living with a rare, chronic blood cancer like polycythemia vera, or PV, you might look good on the outside—even when you don’t feel good on the inside.
Need help talking with your Healthcare Professional about your changing PV symptoms? Download your personalized PV Symptom Conversation Guide to help start the discussion.
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PV symptoms

In PV, your body makes too many blood cells, which can lead to thicker blood, reduced blood flow, and an increased risk of blood clots and other serious complications. PV can also cause troubling symptoms, such as fatigue, itching, and bone pain, just to name a few.

In PV, your body makes too many blood cells, which can lead to thicker blood, reduced blood flow, and an increased risk of blood clots and other serious complications. PV can also cause troubling symptoms, such as fatigue, itching, and bone pain, just to name a few.

This is not a full list of possible PV symptoms. Because each person with PV is unique, be sure to talk with your care management team about all of the symptoms that you experience—even if you don’t think they are all related to your condition.

Remember, it’s important to pay close attention to your symptoms—new or changing symptoms could be a sign that your PV is progressing.

Take notice and

Take action

It’s vital to discuss new or changing PV symptoms.

PV is a progressive disease, which means it could get worse over time.

You track and discuss blood counts with your Healthcare Professional, but it’s just as vital to discuss changing symptoms as well, and how they may be affecting your life.

Symptoms can change so slowly over time, you may not even notice them. Changes in the frequency or severity of your PV symptoms can be a sign of disease progression.

Start the conversation today with your customized PV Symptom Conversation Guide.

Step 1 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Tiredness or Fatigue
Are there activities you were able to do 3 months ago that you struggle with now?
How many normal waking hours each day do you spend in bed or in a chair?
Select answer
0-2 hours
2-4 hours
4-8 hours
8-12 hours
12+ hours
Required field.
How has your fatigue or tiredness changed over time?
Move the slider left (better) or right (worse) to select your answer.
It has not changed very much
Step 2 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Itching
When you shower, how often do you feel itchy afterward?
Select answer
After every shower
Frequently
Occasionally
Seldom
Never
Required field.
Have you found yourself taking shorter, fewer, or cooler showers to try to avoid itchiness?
How has your itching changed over time?
Move the slider left (better) or right (worse) to select your answer.
It has not changed very much
Step 3 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Bone Pain
Have you felt any deep achiness throughout your body that is not joint pain or arthritis?
Does bone pain ever cause you to change or limit your activities?
How has your bone pain changed over time?
Move the slider left (better) or right (worse) to select your answer.
It has not changed very much
Step 4 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Brain Fog Brain fog Brain fog
How often does brain fog interfere with your daily activities?
Select answer
Multiple times each day
Once-a-day
A few times a week
A few times a month
Never
Required field.
How has your brain fog changed over time?
Move the slider left (better) or right (worse) to select your answer.
It has not changed very much
Step 5 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Headaches
How often do headaches limit your ability to carry out normal, daily activities?
Select answer
Every day
A few days each week
Once a week
A few times a month or less
Never
Required field.
How have your headaches changed over time?
Move the slider left (better) or right (worse) to select your answer.
They have not changed very much
Step 6 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Fever
How often do you experience fevers of over 100° F?
Select answer
Every day
A few days each week
Once a week
A few times a month or less
Never
Required field.
How have your fevers changed over time?
Move the slider left (better) or right (worse) to select your answer.
They have not changed very much
Step 7 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Unintentional Weight Loss
How much weight have you lost over the last 6 months?
Select answer
None
1-5 pounds
5-10 pounds
10-20 pounds
20+ pounds
Required field.
How has your unintentional weight loss changed over time?
Move the slider left (better) or right (worse) to select your answer.
My weight has not changed at all
Step 8 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Abdominal Pain or Discomfort
Do you experience abdominal discomfort after eating or when lying down flat on your back?
How has your abdominal pain changed over time?
Move the slider left (better) or right (worse) to select your answer.
It has not changed very much
Step 9 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Feeling of Fullness
Do you feel full quickly without eating much at meals?
How has your feeling of fullness changed over time?
Move the slider left (better) or right (worse) to select your answer.
It has not changed very much
Step 10 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Inactivity
How many normal waking hours each day do you spend in bed or in a chair?
Select answer
0-2 hours
2-4 hours
4-8 hours
8-12 hours
12+ hours
Required field.
How has your inactivity changed over time?
Move the slider left (better) or right (worse) to select your answer.
It has not changed very much
Step 11 of 13
Please answer the following questions about how your PV symptoms affect your daily activities.
Night Sweats
Do night sweats wake you or impact your sleep?
How often did this happen in the last month?
Select answer
Every night
A few nights a week
One night a week
A few nights a month
Never
Required field.
How have your night sweats changed over time?
Move the slider left (better) or right (worse) to select your answer.
They have not changed very much
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